One change I'd like to ask for is that if you can get a scale that is a large like a twin bed & a lift. It would be good for low muscle tone kids/young adults and to be able to measure their length. I rely on GI to help with my daughter's weight, nutrition, and overall growth monitoring. We rely on accurate weights for medication and dietary changes. I just think in the long term as my daughter gets bigger we will have to lift her out and so the lift to get her safely out of her wheelchair will help. If you truly want to maintain the best care for her in her lifetime I see the need for this.

The team who drew my daughters blood was fantastic! They took their time, talking to her to calm her down, and helped me hold her while she was very upset, they were amazing.

Dr recommended getting a upper GI that afternoon. Nurse who took us to get bloodwork and gave me a sheet to call and schedule the appt myself as you were running a trial. I called Children's to do just that and they were shocked that the nurse did not coordinate the testing and they didn't even have the order in their system so we did a 3-way call with MNGI to be able to make an appt. My recommendation is to never make a parent do this activity especially if the request is to get the scan done that afternoon. This is not self- check out at a retail store. Also, zero feedback on status of scan after I've called 2x. I work for a national radiology practice and it takes and average of 3.5-4.5 min to read a CT scan so there is no possible way the results are not ready. Meanwhile, I have a child who is vomiting multiple times a day for 11 days with zero answers. Very poor unacceptable aftercare.

Honestly, I wasn't a huge fan of that location

I was called to make a follow up appointment days after having labs which caused much anxiety for me and my daughter about negative results. This request should have been made at the end of appointment or after lab results came in. Also a letter sent thru patient portal from provider with clear lab results would also have been nice.

I want to get to the root of what is causing my sons problems. constipation isn't normal. I understand fixing the current symptoms, but something wrong is causing it. She said it's typically caused by 2 things- he tested negative for both of those. So now what? I don't understand the "wait and see" mentality. Instead of waiting for 3 months, I would like to know what else could be tested/what other dr might be able to help find out what is causing it. I was also not called about test results, I had to call. messages were not returned on several occasions.

Referral is low due to distance travel to see provider. Not quite sure why they have not scoped my daughter to determine root cause, she has now been dealing with symptoms for 2 months.

they didnt fax the orders for a scan or meds which I had to call back mulitple times, annoying, follow up with the care you talk about. This should be completed before the patient leaves the clinic